Patient Information

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Patient Information2022-12-08T09:59:03+11:00

A melanoma diagnosis can be a confusing and traumatic time for patients. That’s why we have information available for patients and their families to support them on their melanoma journey.

Patient Guides

There are four different guides based on the stage of melanoma:

  • Melanoma Prevention and Early Detection
  • Early Melanoma (Stage 0-II)
  • Stage III Melanoma
  • Stage IV Melanoma

The guides will help you to:

  • Answer questions you have
  • Understand melanoma diagnosis, treatment and follow-up care
  • Know where to go for further information and resources

These guides can be downloaded by clicking on the cover image.

To order a print version use the green button below. 

Melanoma Prevention and Early Detection

Early Melanoma
(Stage 0 – II)

Stage III

Stage IV

If you are a patient or carer and would like a printed version of a guide mailed to you please complete the Patient Information Guides Order Form using the link below.

If you are a medical clinic and would like to order our Patient Guides in bulk at no charge, please order on our Melanoma Education website.

Patient Video – Early Stage Melanoma: Your Questions Answered

Receiving a diagnosis of early stage (Stage I or II) melanoma can be overwhelming, so Melanoma Institute Australia has produced this informative video for newly diagnosed patients.

Watch MIA’s Prof Georgina Long AO (Medical Oncologist) and Dr Tom Pennington (Surgical Oncologist) as they answer the most commonly asked questions about an early stage melanoma diagnosis.

Please note that the content was accurate at time of publishing (August 2021) but may not reflect the rapidly evolving treatment landscape and approvals in Australia.

Patient Information Brochures

Our Patient Information brochures offer a detailed look at melanoma diagnostic tools, treatments and procedures, including preparing for surgery, possible side effects, and managing recovery, including exercises.

There are also brochures which explain our Clinical Trials and Biospecimen Bank, and how you can be part of our research.

Click the cover images below to download PDF.

Confocal Microscopy

Understanding Melanoma – A Comic Book for Kids

Melanoma Institute Australia has collaborated with Jumo Health to produce a comic book for kids aged 7 to 12 to help them understand melanoma.

The story follows a girl whose mum has advanced melanoma. The Medikids help her understand what melanoma is, how it is treated and how she can support her mum.

Special thanks to Assoc Prof Matteo Carlino (Medical Oncologist), Dr Megan Lyle (Medical Oncologist), Dr Iris Bartula (Psychologist) and Sarah Lane (Clinical Nurse) for their guidance in producing this comic.

We also are so grateful to our patient Karen and her family for sharing their journey with us, and featuring in the comic.

Patient Forums and Webinars

Melanoma Institute Australia hosts Community Forums and Webinars to keep melanoma patients, and their carers, updated on the latest in melanoma diagnosis, treatment, care and research.

Patient Videos – MPA Melanoma Symposium Webinar Series

These videos are recordings of an informative series of four webinars, which provide information for melanoma patients and their carers on melanoma diagnosis, treatment, care and research.

The series was produced by Melanoma Patients Australia and supported by Melanoma Institute Australia and Bristol Myers Squibb.

Dermatology & Melanoma Surgery

Skin checks, diagnosis, wound management and surgery for primary and advanced melanoma.

Speakers: Assoc Prof Victoria Mar – Alfred Health and Assoc Prof David Gyorki – Peter Mac.

Psychological Health & Wellbeing

The benefits and effects of mental wellbeing, healthy eating and exercise when managing melanoma.

Speakers: Prof Michael Jefford, Prof Jane Turner, MIA’s dietitian Jane Freeman and MIA’s physiotherapist Dr Teresa Lee.

Melanoma Treatments & Clinical Trials

Treatment updates, immunotherapy, and clinical trials including a patient’s experience of being on a clinical trial.

Speakers: MIA’s Prof Georgina Long AO, Prof Grant McArthur – Peter Mac and patient Narelle Wyrsch.

Latest Melanoma Research, Targeted Therapy and Brain Metastases

The latest updates on melanoma research, targeted therapy and brain metastases.

Speakers: MIA’s Prof Richard Scolyer AO, A/Prof Alex Menzies and Prof Angela Hong.

Support for you

Questions you may like to ask your healthcare team

  • What are my treatment choices?
  • What is the goal of my treatment?
  • Will I be ok if I just have surgery and no other treatments?
  • What side effects should I expect from treatment?
  • How can I reduce my risk of side effects?
  • Can I make any lifestyle changes to help me manage my treatment and side effects?
  • Will I be able to work during treatment?
  • Should I get a second opinion? How do I do that?
  • Are there any clinical trials available to me?
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