A melanoma diagnosis can be a confusing and traumatic time for patients. That’s why we have information available for patients and their families to support them on their melanoma journey.
Patient Guides
There are four different guides based on the stage of melanoma:
- Melanoma Prevention and Early Detection
- Early Melanoma (Stage 0-II)
- Stage III Melanoma
- Stage IV Melanoma
The guides will help you to:
- Answer questions you have
- Understand melanoma diagnosis, treatment and follow-up care
- Know where to go for further information and resources
These guides can be downloaded by clicking on the cover image.
To order a print version use the green button below.
Melanoma Prevention and Early Detection
Early Melanoma
(Stage 0 – II)
Stage III
Stage IV
If you are a patient or carer and would like a printed version of a guide mailed to you please complete the Patient Information Guides Order Form using the link below.
If you are a medical clinic and would like to order our Patient Guides in bulk at no charge, please order on our Melanoma Education website.
Melanoma: Questions and Answers Booklet
Our Melanoma: Questions and Answers Booklet is an important supportive care resource for patients with early stage melanoma. It was developed as a psychoeducational resource to help alleviate the fear of recurrence and address anxieties around diagnosis. It is designed to complement our Melanoma Prevention and Early Detection and Early Melanoma Patient Guides.
Click on cover image to download.
Melanoma: Questions and Answers Booklet
Patient Video – Early Stage Melanoma: Your Questions Answered
Receiving a diagnosis of early stage (Stage I or II) melanoma can be overwhelming, so Melanoma Institute Australia has produced this informative video for newly diagnosed patients.
Watch MIA’s Prof Georgina Long AO (Medical Oncologist) and Dr Tom Pennington (Surgical Oncologist) as they answer the most commonly asked questions about an early stage melanoma diagnosis.
Please note that the content was accurate at time of publishing (August 2021) but may not reflect the rapidly evolving treatment landscape and approvals in Australia.
Patient Information Brochures
Our Patient Information brochures offer a detailed look at melanoma diagnostic tools, treatments and procedures, including preparing for surgery, possible side effects, and managing recovery, including exercises.
There are also brochures which explain our Clinical Trials and Biospecimen Bank, and how you can be part of our research.
Click the cover images below to download PDF.
Mucosal Melanoma – English
Clinical Trials – English
Clinical Trials – Simplified Chinese
Understanding Melanoma – A Comic Book for Kids
Melanoma Institute Australia has collaborated with Jumo Health to produce a comic book for kids aged 7 to 12 to help them understand melanoma.
The story follows a girl whose mum has advanced melanoma. The Medikids help her understand what melanoma is, how it is treated and how she can support her mum.
Special thanks to Assoc Prof Matteo Carlino (Medical Oncologist), Dr Megan Lyle (Medical Oncologist), Dr Iris Bartula (Psychologist) and Sarah Lane (Clinical Nurse) for their guidance in producing this comic.
We also are so grateful to our patient Karen and her family for sharing their journey with us, and featuring in the comic.
Patient Forums and Webinars
Melanoma Institute Australia hosts Community Forums and Webinars to keep melanoma patients, and their carers, updated on the latest in melanoma diagnosis, treatment, care and research.
MPA-MIA Melanoma Community Webinar Series 2023
Watch recordings of our 2023 webinar series. The webinars cover Clinical Trials, Mucosal Melanoma, and Fear of Recurrence.
MPA-MIA Melanoma Community Webinar Series 2022
Watch recordings of the 2022 webinar series. Webinars cover Brain Metastases, Immunotherapy & Targeted Therapies, and Detecting Melanoma.
Melanoma Community Forum Hobart
Watch videos of presentations from the Melanoma Community Forum held in Hobart on 3rd November 2022.
Support for you
Questions you may like to ask your healthcare team
- What are my treatment choices?
- What is the goal of my treatment?
- Will I be ok if I just have surgery and no other treatments?
- What side effects should I expect from treatment?
- How can I reduce my risk of side effects?
- Can I make any lifestyle changes to help me manage my treatment and side effects?
- Will I be able to work during treatment?
- Should I get a second opinion? How do I do that?
- Are there any clinical trials available to me?